I had my little boy 5 weeks ago very early at 28 weeks. He was at Exeter hospital and only recently transferred to Bristol for treatment on his head. ...

My name is Lisha Barnes and I lost a baby to NEC on Thanksgiving of 2011. I had my baby on November 11, 2011. He was rushed to the NICU and treated by ...

My little girls were born october 1 2011. I was 31.5 weeks at the time. I was ecstatic that my body made it past 30 weeks. I never in a million years ...

I had my little boy Kian James Grant on the 31st of July 2011 he was born at 27weeks an 6 days weighing 1.35kg he was quite poorly for the first few w ...

Julia's Survival Story Like so many others, my sweet Julia was born 11 weeks early after I developed severe pre-eclampsia and HELLP syndrome. A ...

My story starts on may 11th 2011, I had gone in for a csection as I was pregnant with identical twin girls. Twin 1 Lacey was 4lb 1 and twin 2 Paige wa ...

My twins girls came at 26 weeks and 5 days. When my smallest daughter's water broke, I ended up developing chorioamnionitis, and they had to take them ...

Hi There, I am new to this community. I wish I didn't have to be part of this new 'club' of people who've lost a baby. We had a beautiful baby gir ...

My little one was born 13 weeks early weighing 2lbs 7oz. He did fantastic at first, but on day 15 he stopped tolerating breastmilk. His belly began ...

My name is Laura I am a survivor of NEC, I am 23 years old and will be qualifying as a nurse in two months time. I am a quadruplet and was born two ...

For my entire pregnancy I had been sick. I was on bed rest for 3 months, I had fainting spells and would swell up in a matter of minutes and stay that ...

As i write this my little boy is recovering from NEC for the 2nd time. Alex was born 11 weeks early due to me having really bad pre-eclampsia he weig ...

I gave birth to twins at 27 weeks in October 2010.  My daughter Nancy weighed 1lb 14oz, my son 2lb 3oz. At 15 days old my daughter developed NEC. She ...

Elaine and Chris Jones lost their beautiful daughter, Caitlyn Grace Jones, to NEC on April 16, 2006. This website was created as support network fo ...

Necrotizing Enterocolitis (NEC) is a gastrointestial disease which typically affects premature babies. The disease creates both an infection and i ...

2 days ago my wife gave birth to a full-term, 9.10 lb. baby boy. The doctors were so impressed at how big he was and alert. Upon the first night of ...

Finn Love 11/01/10 He was born 9 weeks early because BV. HE was 3.8 lbs. Scored 9 Apgar. HE breathed with a cpap for 3 days only. He developed a b ...

This is a wonderful website for sharing information. I came on here to see if there were any stories or resources for NEC information on ongoing probl ...

Hi I am a Danish woman living in Copenhagen. I lost my firstborn Ilja to NEC just a month ago. He was born in week 26 + 1 and his weight was almost 1 ...

Atticus Bryce was born on January 16th, 2011, at 24 wks and 4 days gestatation. When he developed signs of NEC, he was 3 weeks old. He had residual fr ...

The Pregnacy was my first. Wondeful!The baby was growing good.My mid-wife said she was going to be a BIG baby 8-9lbs. It was 36 weeks into the pregnan ...

Our baby girl Cessely was born April 29th 2011 the day of the royal wedding how lovely this little angel was meant to be here seeing how we werent exp ...

My baby girl, Madelynn, was born on April 1, 2011. She was 10 weeks and 3 days early, weighing 2 lbs 10 oz. I had severe pre-eclampsia and had been ...

Our daughter, Avalon Rowland, was diagnosed with nec a couple of weeks ago. i began reading up online about the condition and although i always try to ...

My daughter was born August 15th 2010 at 40 weeks. She weighed 7lbs 1oz. She looked absolutely healthy but inside she was not, thy took her to the nur ...

Sometimes the stories come in and my heart smiles a little because a baby is surviving NEC. This site is created for parents like us to share our ...

Unlike many NEC babies, Luke Timothy was considered full-term when he was born on September 18, 2009, at 36 weeks, 3 days. But, due to growth restric ...

Missing him everyday... I lost my son of 8 days to NEC on 2/9/2010. He was born at 31 weeks and 1 day via C section due to my pre-eclampsia after ...

I dont even know where to begin . so i will just start ....My son Amari Allen was born 4/24/10 at 29 weeks. he develope NEC about 3-4 weeks after his ...

I had my little boy back in 2006, who was born 6wks prem and by c-section as i had pre-eclampsia too, so was very poorly. I din’t get to see my baby t ...

The premature infant grows at an incredible rate and so plain breast milk is not sufficient to provide enough energy, protein, and vitamins to grow we ...

Our son, Lincoln was born at 25 weeks and 1 day on April 5, 2009. On day 11 he developed NEC. The bowel had perforated and emergency surgery was per ...

I gave birth to a girl at 28 wks. on July 6, 2009. She tolerated the milk I pumped until she was 2 1/2 wks. When she was taken for surgery, doctors t ...

I developed pre-eclampsia while I was pregnant and had been in and out of the emergency room for about 4 weeks when my doctors finally decided to deli ...

Hi all, I can't believe how common this so called rare disease is. I had my twin boys on the 26th Oct 04 born at 25wks Thomas weighed 1lb 9oz and M ...

My twins were born in December 2008 at 31 weeks. My baby girl Phoebe weighed 2 pounds 11 and my boy Jonah weighed 3 pounds 8. Both were doing well for ...

We underwent IVF in September 2008. After all the treatment treatment, my wife produced so many eggs and her ovary’s were so swollen that the doctor ...

I would like to vent my story about my angel, baby girl Nevaya. My Nevaya passed away on Good Friday. She was born at 24wks, weighing 1 3oz. She was b ...

I been wanting to make a web sit but i found this one. I was 27 weeks and 6 days. I was in and out of the ER all week. Because of pains from a blad ...

I went to the er at 8:00 on May 23rd from being dizzy & passing out at work, and staring having contractions so they checked me i was 24 weeks &am ...

On June 14, 2007 at 29 weeks 5 days Calypso was born. She was 3 lbs 1.9 oz and 13 inches long. She arrived here with a cry after a 6 week hospital sta ...

Our son Bailey was born at 26 weeks after I developed severe pre-eclampsia. Bailey was 500g (1lb 1oz)and was the tiniest thing I had ever seen. Bai ...

Camdynn and her twin sister, Ryleigh, were born on December 16th 2008 at 28 weeks due to PPROM. Camdynn weighed 2.5 lbs. and was 13 3/4 inches. Cam ...

Feb07 baby Patrick was born 28 wks early due to placental abruption. While pregnant I was diagnosed with intrauterine growth restriction due to ineffi ...

Writing this only 2 weeks after louies death is killing me but i need to write it down so maybe someone who knows what I'm going through can understan ...

Our daughter Kayleigh Dawn was born at 23 weeks on Sept 4, 2008. Kayleigh lived for 43 days in the NICU. She was a beauitful baby girl with a fighting ...

One of the nation's largest premature infant databases (NICHD) has been examined to determine the risks of dying for infants with short bowel syndro ...

Dawson Thomas was born Jan 23rd 2008. He was born at 29 weeks. He was airlifted from Sudbury to Women's College Hospital 2 days later. He was delivere ...

Our son was born at 25 weeks, 5 days gestation because he had developed fetal hydrops from a virus I had contracted and passed to him. I was exposed t ...

Hello Maddison was born on 15.12.06 weighing 3lbs 14oz, she was born 3 months early due to my illness, I have a heart problem, I was told I may never ...

My princess Anastasia Elizabeth was diagnosed with NEC back in may. Her bowels actually perforated and all her meconium had spilled out into her abdom ...

I am reading the other stories on the website and I am reminded of just how lucky I am. If there are people reading this sight for information I hope ...

HEARTBROKEN BY TANYA CADD This is a story about my little man. Jayden Dareen Manikiza 17.02.08 - 05.03.08 Age 17 days old. My name is Tanya C ...

Isabella was born via emergency C Section at 37 weeks due to me having severe pre eclampsia. She was born on 07/07/07 - a lucky birthday they tell us. ...

My son daniel died of nec it was the hardest thing i ever went through I thank you for your story.

To the memory of my Daughter Corine Bay Feldman. Born April 27 2005 -Died June 23 2005. After losing our first child at 20 weeks gestation and alm ...

Catherine Marie was born 2-19-2007 at 32 weeks and weighing 3lbs and 13 oz. She was a twin and sister weighed 4lbs 1 oz. Catherine had the cord wra ...

Probiotics are defined as live microbes, such as bacteria, that reside in the gut and provide benefits to the person taking them. Many of us see pro ...

December 16, 2005 at 5:30pm Kaitlyn Jesse Evans was born by emergency c-section because her mom had severe Preeclampsia and HELLP. Kaitlyn was born in ...

My husband and I were finally married September 22, 2006 after a six year relationship. We had our careers, our marriage and bought a house...all with ...

A study by Lambert and colleagues (1) sought to find out reasons why some term babies may develop NEC. They looked back almost 6 years to review 30 c ...