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  • Jun 2016
  • 26-05-16(20:08:27)

    It was 2010 when I got pregnant under the worst conditions. The father of the baby chose to be with other women and not really worry about me or the b ...

  • 01-06-16(13:07:19)

    This is my story on NEC and my baby Mikel Angelo April 6, 2016 23 weeks pregnant I went into Mercy medical hospital because I started to spot blee ...

  • May 2016
  • 04-06-14(0:13:24)

    When my son was born he was as healthy as any other baby.a week later my world collapsed when i noticed my son was not ok.i took him to the near by ho ...

  • 30-12-13(6:48:27)

    My son Carter Griffith was born December 2013, 3 1/2 months too soon. At 2:30 on a Wednesday morning I rolled over in bed and felt a gush! I calle ...

  • 03-01-14(2:22:17)

    My daughter Kayla Nicole was born 12/09/2013-my precious baby was 2.4 lbs- she was only given my breastmilk/ Kayla was diagnosed with NEC 12/22-she ha ...

  • 03-09-14(15:38:36)

    Hi all! I'm a 26-year-old, NEC survivor. I used to really hate the giant scars on my stomach from the NEC surgery, but everyone told me they were my b ...

  • 25-09-14(21:21:35)

    Me and my husband went to for an overnight stay to Glasgow for a christening and I went into labour. I was 25 weeks and 3 days pregnant with twins. I ...

  • 15-10-14(9:27:17)

    MY SWEET SWEET ANGEL, ANGELA At 30 weeks and 2 days, I decided to call my midwife to check if I needed my blood pressure checked as I felt that somet ...

  • 16-04-15(22:45:17)

    Baby Ella survival story. My daughter Ella was born at 26 weeks and 5 days, she like many others I have read about was born in great condition within ...

  • 18-12-14(5:02:03)

    This is the story of my miracle, Sadie. Sadie is a twin, and they are 27 weekers. They were born healthy, needing no resuscitation or even help breath ...

  • 27-12-14(7:38:24)

    its called dayz you need arma 2 and ootiaerpn arrowhead to play it then all you have to do is download the dayz mod that is free and you can play it ...

  • 09-01-15(16:24:20)

    My daughter was born 11/9/14 at 23 weeks 6 days, weight 1lb 1oz, 11in. Of course we knew there weren't too high of hopes, but I still had my hope ...

  • 27-04-15(19:51:09)

    My niece was born at 34 weeks. She weighes about 6lbs now. She has had bloody stools, ( they found another bloddy diaper today) my sister is completel ...

  • 26-04-15(17:31:38)

    May 1, 2013 was the scariest day of my life. I woke up got ready for school and started my day like any other day. But this day was different I was ...

  • 23-12-15(2:48:03)

    I was pregnant with my first child, after one of my appointments I was sent to the hospital to do a 24 hour protein test. The next morning nurses come ...

  • 10-01-16(19:19:06)

    Hi we would like to share our story. On the 9/11/15 our beautiful daughter lily Louise was born at 16.37 weighting 5/13. At our 20week scan we found ...

  • 01-02-16(22:18:02)

    In Dec 1976 I was born by emergency c.section at 38 weeks and had Rhesus isoimmunisation of the newborn, so needed a blood transfusion. It became appa ...

  • 28-03-16(18:16:37)

    Hi. I'm writing on behalf of my sister. Her baby was born at 32 weeks at 3#7 oz. he was doing great then developed nec. He has since received 10 days ...

  • 07-05-16(20:58:34)

    Hola hoy quiero compartir mi historia Yo tuve ami bebe nicholas alas 29 semanas de embarazada porque me diagnosticaron preclamcia mi bebe fue diagno ...

  • 14-01-15(17:58:04)

    My daughter, Taylor, is 15 years old. She is a former 24 week preemie. She spent her first year of life in the NICU fighting for her life. She battled ...

  • Oct 2013
  • Survivor and 19 years old!

    I was born 4 months premature and had NEC ( as well as a hole in my heart that they fixed, leaving me with a scar on my left shoulder blade). Of cours ...

  • Baby Penelope's Survival Story

    Penelope’s start was a normal one. She arrived after a 39 week pregnancy and normal vaginal delivery. She was diagnosed with NEC at 10 hours old. ...

  • Jul 2013
  • Baby Elijah's Story

    It was a dream come true after 11 years trying to have a child, the news I was pregnant lifted me into the air and I dreamed about if it was a girl a ...

  • Baby Jaiden's Survival Story - Mom needs help

    my son Jaiden was born early at 29weeks gestation at the Melbourne Royal Women's Hospital. He had a great start to life only needing cpap for the firs ...

  • Baby Samuel's Story

    I was 18 years old with my first little boy Samuel Ramon VanEpps. I had no contractions but I was spotting. So my boyfriend and I went to the hospital ...

  • Jun 2013
  • Baby Jaiden's Survival Story - Mom needs advise

    My son Jaiden was born early at 29 weeks gestation at the Melbourne Royal Women's Hospital. He had a great start to life only needing cpap for the fir ...

  • Apr 2013
  • Baby twins Tobi and Fore's Survival Story

    Tobi & Fore - NEC Survivors Hello everyone, last night for some reason, I started to think about my pregnancy/birthing experience and stumbled upon ...

  • Mar 2013
  • A Story of Motherhood and Survival - A mother talks about he ...

    Talking to my seven-year-old daughter about my cancer often gets people to laugh. She claims that she is the hero saying, "I saved my mommy's life." I ...

  • Baby Kyrans' Story

    On 11/24/2012 my son Kyran was born at 30 weeks. He was so precious to me and I was so relieved to see that he was doing so well and breathing on his ...

  • Twins - Baby Lanes' Survival Story and Baby Bennett's Story.

    On January 18th 2013 I went into labor with my twins...at 25 weeks. My twins suffered from twin to twin transfusion syndrome and I underwent laser sur ...

  • Feb 2013
  • Baby Addisyn's Story

    My daughter was born on November 2nd, 2012 at 28 weeks due to incompetent cervix and failed cerclage. The cerclage failed due to Complete Placenta Pre ...

  • Baby Malorie's Story

    Our difficult journey began early morning, 12:30am on January 27th 2013. I woke my husband up having contractions. I was very alarmed because I was on ...

  • Baby Bentley Kole's Story

    I had my son Bentley Kole October 12,2012 at 11:44 am he was born by c-section because he was breeched he was born feet first! He weighted 2 pounds 9. ...

  • Jan 2013
  • Baby Riley's Survival Story

    I find it incredibly difficult to write the story of my child's life, but I will do my best. At 28 weeks, I had a partial placental abruption, whic ...

  • Mustafa, a Survivor shares her story

    Hi, my name is Mustafa. I am a 21 year old and I was born prematurely and had NEC surgery. My story is not as exciting i guess as may some other peopl ...

  • Nicholas' Survival Story

    Our story starts like many other stories on here. I was induced early because of high blood pressure and high urine protein. I was due the end of July ...

  • Dec 2012
  • Baby Hayleigh Grace's Survival Story

    Hayleigh Grace Sears was born July 14, 2012 to Amber Perry and Danny Sears after a very complicated pregnancy. She was born by emergency C Section at ...

  • Baby Ramsey's Story

    Ramsey's Story NEC Awareness and find a Cure November 3. RAMSEY'S STORY------ In August of 2012, I developed preeclampsia and had to have Ramsey ...

  • Nov 2012
  • Update on our Survivor Monique

    Update on Monique: Some of you may have read Moniques story previously. On November 16 she turned 23 years old. On November 21 I remembered that it w ...

  • Baby Brentlee's Survival Story

    When I was 39 weeks I delivered my healthy little girl by a scheduled c-section (not due to complication) she was so beautiful! Brentlee Stockard was ...

  • Sep 2012
  • Baby Lulu's Story

    Hi, after ttc to conceive for 4 1/2 years with pcos i finally fell pregnant naturally! I had a lovely and uncomplicated pregnancy until 6 months where ...

  • Baby Calypso's Story

    I submitted Calypso's story before but it was a very condensed version. I would like to update it with my whole story. At 9 weeks I started bleedin ...

  • Aug 2012
  • Baby Mia's Story

    LONG STORY: Hi everyone..I'm new to the group. On November 18 2010 I gave birth to our first born, our beautiful precious Mia at 29 weeks & 3 day ...

  • Claire a survivor in her Senior Year at High School

    I found this website on Google trying to find out more about NEC. Though I am not a parent with a child who had/has NEC, I am the child that had NEC. ...

  • Baby boy Triplet Giovanni's Survival Story

    Our little boy Giovanni was born 31/5 days he is one of Triplets. Our story is a story of survival, all the babies were born healthy and at about 33 w ...

  • Jun 2012
  • Twin 'connection' with NEC

    The reason why we see so many twins with NEC reflect a couple of things.The most important is the link between preterm birth and twins. Having multipl ...

  • Baby Camryn Leena Rose's Story

    On the morning of February 18, 2012 I woke up in the utmost pain I've ever endured. From 8am until 7pm I endured the pain the whole time. Around 7 tha ...

  • Baby boy survivor

    When I found out I was pregnant it was the most amazing feeling in the world, even though I was young and I was not ready I felt so complete and s ...

  • May 2012
  • Baby Matthijs's Survival Story

    Hello everyone, If my english isnt all that great its because I am from holland. I am 25 and my daughter (premature) is 7 and my son also prematur ...

  • Baby may have NEC, Mom needs support

    Hi, everyone. I found this page through google as I was trying to learn more about this ugly infection. I read a few stories and it breaks my heart t ...

  • Baby Brother Campbell's Story and Baby Brother Joseph's Surv ...

    On October 31, 2009, our twin boys, Joseph and Campbell, were born at 24 weeks gestation. Campbell passed away after 23 beautiful days of life as a re ...

  • Baby Landon's Survival Story

    Landon was delivered via emergency c-section Easter Sunday, April 24, 2011 @24 weeks. I developed a sudden onset of severe preeclampsia/ HELLP. He wei ...

  • Baby Jason's Story

    This is about my son Jason. My husband and I tried for 6 yrs to have a baby and in august of 2011 we found out we were finally going to be parents. It ...

  • Baby Isabell Anna's Survival Story

    I am a mother of four beautiful children, two of which were preemies, my youngest preemie born exactly three months premature at 26 Weeks, offically a ...

  • Baby Kyree's Story

    My son Kyree was born 9 Weeks early at 1lb 3Oz due to severe growth restriction and fetal distress. When he got to the NICU, he was doing perfectly. H ...

  • Baby Aiden's Story

    As a mother your job is to feed your child, bathe your child, put a roof over their heads, clothe them, and teach them values. Help them tie their sho ...

  • Baby Alana's Survival Story

    Alana came into this world 3 months early on April 22, 2011. She weighed 2 pounds 7 ounces. I was able to see Alana for only about 2 minutes before sh ...

  • Apr 2012
  • Baby Patrick's Story

    I was expecting a beautiful, much wanted and loved son in October.  On June 14, my water broke.  I was 23 weeks...and his only hope was to make it a ...

  • Baby Thor's Survival Story

    I had to have a scheduled C-section because my baby wasn't growing. My son was born 4 lbs. 3 oz. and he had juandice and his lungs weren't developed c ...

  • Baby Chloe's Survival Story

    Our daughter Chloe was born in Arrowe Park Hospital in the Wirral, on the 19th May 2011, at just 26 Weeks and weighing only 1lb 15oz. During labour ...

  • Baby Leo's Story

    2 out of 3 of my babies have contracted NEC & my little boy didn't survive. I had twin boys on Mon 16th Jan 2012 at 33 weeks I was in hospital 5 w ...

  • Baby Bailey Rae Survival Story

    First of all, thank you everyone for sharing your stories! Bailey Rae came into our lives on July 8th, 2010 5 weeks early at 5.2 pounds. She was in th ...

  • Baby Emma's Story

    Hi my name is Chelsea I had preemie twins at 28 weeks pregnant august 22 2011 at OU childrens hospital Emma 2 pounds 15 ounces and Addyson 2 pounds 11 ...

  • Mar 2012
  • Baby Kenzie's Survival and Fighting Story

    My daugher Shannon had an emergency C-Section two months early because a special ultra sound caught a twisted bowel in our grand daughter Kenzie. Kenz ...

  • Baby Monique Survival Story

    My daughter Monique is 22 years old now. I had her when I was a very young 20 year old at 32 weeks. She was 3 lbs 11 oz when she was born. On day 5 of ...

  • Jan 2012
  • Baby Boy fighting NEC

    I had my little boy 5 weeks ago very early at 28 weeks. He was at Exeter hospital and only recently transferred to Bristol for treatment on his head. ...

  • Baby Melvin's Story

    My name is Lisha Barnes and I lost a baby to NEC on Thanksgiving of 2011. I had my baby on November 11, 2011. He was rushed to the NICU and treated by ...

  • Dec 2011
  • Baby Bryn's Story

    My little girls were born october 1 2011. I was 31.5 weeks at the time. I was ecstatic that my body made it past 30 weeks. I never in a million years ...

  • Oct 2011
  • Baby Kian James Grant's Story

    I had my little boy Kian James Grant on the 31st of July 2011 he was born at 27weeks an 6 days weighing 1.35kg he was quite poorly for the first few w ...

  • Baby Julia's Survival Story

    Julia's Survival Story Like so many others, my sweet Julia was born 11 weeks early after I developed severe pre-eclampsia and HELLP syndrome. A ...

  • Paige's Survival Story, her twin sister is Lacey

    My story starts on may 11th 2011, I had gone in for a csection as I was pregnant with identical twin girls. Twin 1 Lacey was 4lb 1 and twin 2 Paige wa ...

  • Adriana's Survival Story

    My twins girls came at 26 weeks and 5 days. When my smallest daughter's water broke, I ended up developing chorioamnionitis, and they had to take them ...

  • Sep 2011
  • Aida's Story

    Hi There, I am new to this community. I wish I didn't have to be part of this new 'club' of people who've lost a baby. We had a beautiful baby gir ...

  • Aug 2011
  • Benjamin's Survival Story

    My little one was born 13 weeks early weighing 2lbs 7oz. He did fantastic at first, but on day 15 he stopped tolerating breastmilk. His belly began ...

  • Laura's Survivor Story

    My name is Laura I am a survivor of NEC, I am 23 years old and will be qualifying as a nurse in two months time. I am a quadruplet and was born two ...

  • Jul 2011
  • Samuel's survival story

    For my entire pregnancy I had been sick. I was on bed rest for 3 months, I had fainting spells and would swell up in a matter of minutes and stay that ...

  • Alex's Story

    As i write this my little boy is recovering from NEC for the 2nd time. Alex was born 11 weeks early due to me having really bad pre-eclampsia he weig ...

  • Nancy's Story

    I gave birth to twins at 27 weeks in October 2010.  My daughter Nancy weighed 1lb 14oz, my son 2lb 3oz. At 15 days old my daughter developed NEC. She ...

  • Jun 2011
  • The purpose of this site: A Support Network for Parents

    Elaine and Chris Jones lost their beautiful daughter, Caitlyn Grace Jones, to NEC on April 16, 2006. This website was created as support network fo ...

  • What is NEC?

    Necrotizing Enterocolitis (NEC) is a gastrointestial disease which typically affects premature babies. The disease creates both an infection and i ...

  • Sam's Story

    2 days ago my wife gave birth to a full-term, 9.10 lb. baby boy. The doctors were so impressed at how big he was and alert. Upon the first night of ...

  • Finn's Story

    Finn Love 11/01/10 He was born 9 weeks early because BV. HE was 3.8 lbs. Scored 9 Apgar. HE breathed with a cpap for 3 days only. He developed a b ...

  • Kevin's Story

    This is a wonderful website for sharing information. I came on here to see if there were any stories or resources for NEC information on ongoing probl ...

  • Ilja's Story

    Hi I am a Danish woman living in Copenhagen. I lost my firstborn Ilja to NEC just a month ago. He was born in week 26 + 1 and his weight was almost 1 ...

  • Atticus' Story

    Atticus Bryce was born on January 16th, 2011, at 24 wks and 4 days gestatation. When he developed signs of NEC, he was 3 weeks old. He had residual fr ...

  • Breonna's Story

    The Pregnacy was my first. Wondeful!The baby was growing good.My mid-wife said she was going to be a BIG baby 8-9lbs. It was 36 weeks into the pregnan ...

  • Cessely's Story

    Our baby girl Cessely was born April 29th 2011 the day of the royal wedding how lovely this little angel was meant to be here seeing how we werent exp ...

  • Madelynn's Story

    My baby girl, Madelynn, was born on April 1, 2011. She was 10 weeks and 3 days early, weighing 2 lbs 10 oz. I had severe pre-eclampsia and had been ...

  • Avalon's Story

    Our daughter, Avalon Rowland, was diagnosed with nec a couple of weeks ago. i began reading up online about the condition and although i always try to ...

  • Jami's Story

    My daughter was born August 15th 2010 at 40 weeks. She weighed 7lbs 1oz. She looked absolutely healthy but inside she was not, thy took her to the nur ...

  • Babies surviving after NEC

    Sometimes the stories come in and my heart smiles a little because a baby is surviving NEC. This site is created for parents like us to share our ...

  • Sep 2010
  • Luke Timothy's Story

    Unlike many NEC babies, Luke Timothy was considered full-term when he was born on September 18, 2009, at 36 weeks, 3 days. But, due to growth restric ...

  • Michael's Story

    Missing him everyday... I lost my son of 8 days to NEC on 2/9/2010. He was born at 31 weeks and 1 day via C section due to my pre-eclampsia after ...

  • Amari's Story

    I dont even know where to begin . so i will just start ....My son Amari Allen was born 4/24/10 at 29 weeks. he develope NEC about 3-4 weeks after his ...

  • Sara's Story

    I had my little boy back in 2006, who was born 6wks prem and by c-section as i had pre-eclampsia too, so was very poorly. I din’t get to see my baby ...

  • Jun 2010
  • An Exclusive Human Milk Diet Can Reduce Necrotizing Enteroco ...

    The premature infant grows at an incredible rate and so plain breast milk is not sufficient to provide enough energy, protein, and vitamins to grow we ...

  • Oct 2009
  • Lincoln's story

    Our son, Lincoln was born at 25 weeks and 1 day on April 5, 2009. On day 11 he developed NEC. The bowel had perforated and emergency surgery was per ...

  • Sep 2009
  • Kenyatta's story

    I gave birth to a girl at 28 wks. on July 6, 2009. She tolerated the milk I pumped until she was 2 1/2 wks. When she was taken for surgery, doctors t ...

  • Aug 2009
  • Kendal's Story

    I developed pre-eclampsia while I was pregnant and had been in and out of the emergency room for about 4 weeks when my doctors finally decided to deli ...

  • Jul 2009
  • Thomas and Matthew's story

    Hi all, I can't believe how common this so called rare disease is. I had my twin boys on the 26th Oct 04 born at 25wks Thomas weighed 1lb 9oz and M ...

  • Jun 2009
  • Phoebe and Jonah's story

    My twins were born in December 2008 at 31 weeks. My baby girl Phoebe weighed 2 pounds 11 and my boy Jonah weighed 3 pounds 8. Both were doing well for ...

  • May 2009
  • Oliver and Joseph's story

    We underwent IVF in September 2008. After all the treatment treatment, my wife produced so many eggs and her ovary’s were so swollen that the docto ...

  • Nevaya's Story

    I would like to vent my story about my angel, baby girl Nevaya. My Nevaya passed away on Good Friday. She was born at 24wks, weighing 1 3oz. She was b ...

  • Calib's story

    I been wanting to make a web sit but i found this one. I was 27 weeks and 6 days. I was in and out of the ER all week. Because of pains from a blad ...

  • Apr 2009
  • Trinity's story

    I went to the er at 8:00 on May 23rd from being dizzy & passing out at work, and staring having contractions so they checked me i was 24 weeks &am ...

  • Calypso's story

    On June 14, 2007 at 29 weeks 5 days Calypso was born. She was 3 lbs 1.9 oz and 13 inches long. She arrived here with a cry after a 6 week hospital sta ...

  • Bailey's story

    Our son Bailey was born at 26 weeks after I developed severe pre-eclampsia. Bailey was 500g (1lb 1oz)and was the tiniest thing I had ever seen. Bai ...

  • Feb 2009
  • Camdynn's story

    Camdynn and her twin sister, Ryleigh, were born on December 16th 2008 at 28 weeks due to PPROM. Camdynn weighed 2.5 lbs. and was 13 3/4 inches. Cam ...

  • Jan 2009
  • Patrick's story

    Feb07 baby Patrick was born 28 wks early due to placental abruption. While pregnant I was diagnosed with intrauterine growth restriction due to ineffi ...

  • Louie's story

    Writing this only 2 weeks after louies death is killing me but i need to write it down so maybe someone who knows what I'm going through can understan ...

  • Kayleigh's story

    Our daughter Kayleigh Dawn was born at 23 weeks on Sept 4, 2008. Kayleigh lived for 43 days in the NICU. She was a beauitful baby girl with a fighting ...

  • Very Low Birth Weight Premature Infants are at Higher Risk o ...

    One of the nation's largest premature infant databases (NICHD) has been examined to determine the risks of dying for infants with short bowel syndro ...

  • Sep 2008
  • Dawson's story

    Dawson Thomas was born Jan 23rd 2008. He was born at 29 weeks. He was airlifted from Sudbury to Women's College Hospital 2 days later. He was delivere ...

  • Aug 2008
  • Declan's story

    Our son was born at 25 weeks, 5 days gestation because he had developed fetal hydrops from a virus I had contracted and passed to him. I was exposed t ...

  • Jul 2008
  • Maddison's story

    Hello Maddison was born on 15.12.06 weighing 3lbs 14oz, she was born 3 months early due to my illness, I have a heart problem, I was told I may never ...

  • Anastasia's story

    My princess Anastasia Elizabeth was diagnosed with NEC back in may. Her bowels actually perforated and all her meconium had spilled out into her abdom ...

  • Jun 2008
  • Becky's story

    I am reading the other stories on the website and I am reminded of just how lucky I am. If there are people reading this sight for information I hope ...

  • Jayden's story

    HEARTBROKEN BY TANYA CADD This is a story about my little man. Jayden Dareen Manikiza 17.02.08 - 05.03.08 Age 17 days old. My name is Tanya C ...

  • Jan 2008
  • Isabella's story

    Isabella was born via emergency C Section at 37 weeks due to me having severe pre eclampsia. She was born on 07/07/07 - a lucky birthday they tell us. ...

  • Daniel's story

    My son daniel died of nec it was the hardest thing i ever went through I thank you for your story.

  • Dec 2007
  • Corine's story

    To the memory of my Daughter Corine Bay Feldman. Born April 27 2005 -Died June 23 2005. After losing our first child at 20 weeks gestation and alm ...

  • Catherine's story

    Catherine Marie was born 2-19-2007 at 32 weeks and weighing 3lbs and 13 oz. She was a twin and sister weighed 4lbs 1 oz. Catherine had the cord wra ...

  • Nov 2007
  • Probiotics Can Prevent Necrotizing Entercolitis

    Probiotics are defined as live microbes, such as bacteria, that reside in the gut and provide benefits to the person taking them. Many of us see pro ...

  • Oct 2007
  • Kaitlyn's story

    December 16, 2005 at 5:30pm Kaitlyn Jesse Evans was born by emergency c-section because her mom had severe Preeclampsia and HELLP. Kaitlyn was born in ...

  • Sep 2007
  • Ella's story

    My husband and I were finally married September 22, 2006 after a six year relationship. We had our careers, our marriage and bought a house...all with ...

  • Jul 2007
  • NEC Can Also Occur In Full Term Babies

    A study by Lambert and colleagues (1) sought to find out reasons why some term babies may develop NEC. They looked back almost 6 years to review 30 c ...

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