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Trinity’s story

April 9th, 2009 by Crystal Ammons

I went to the er at 8:00 on May 23rd from being dizzy & passing out at work, and staring having contractions so they checked me i was 24 weeks & 1 day pregnant then.

I went home after getting doses of Tributaline & was pretty drugged up still later that night at Midnight i woke up to a huge gush of water that smelt like Urine so i went back to sleep.. this was on a saturday.

I went in Wednesday May 28th to find out my water had been broke & i was dialated in active labor, i rushed immediately to Sacred Heart Hospital that has a wonderful NICU, and i had an emergency c-section so me & the baby could fight for our lives.

Trinity was born that nigth at 10:10 pm weighin 1 pound 12 ounces 12 & half inches long.

She done great throughout her NICU stay due to everyone surprise she was one of the healthiest babies in there. She finally got off the vent on July 5th.

She was doing wonderful when we went to visit her on July 6th. We left later that night & at 3am I received a phone call from her doctor saying “Get here quick your daughter had to have emergency surgery or she will die” this was so overwhelmimg I immediately called my fiance & we rushed up there meeting each other & they started surgery at 4:30 & they came out and told us there was nothing they could do all her bowels were dead due to NEC & nothing could be saved when just a few hours earlier she was fine..

At 5:22 my daughter died in my arms & I never wanna go through that again.

Calypso’s story

April 9th, 2009 by Melissa Lane

On June 14, 2007 at 29 weeks 5 days Calypso was born. She was 3 lbs 1.9 oz and 13 inches long. She arrived here with a cry after a 6 week hospital stay while pg.

She did well at first and they started her on feeds. On June 20th she stopped digesting milk and her stomach was ‘loopy’

They officially declared her in NEC on June 21st.

The NEC killed her kidneys and she began to swell and get very sick. She had multiple transfusions, xray’s about 3-4 times a day. They couldn’t do dialysis because of the NEC being in her body.

On July 6 we had a sit down with the drs and they said that the NEC was finally gone. Unfortunately it was too late. On July 7, 2007 at 3:50 pm after life support being switched off Calypso went into Glory with God.

Bailey’s story

April 1st, 2009 by Michelle Marshall

Our son Bailey was born at 26 weeks after I developed severe pre-eclampsia. Bailey was 500g (1lb 1oz)and was the tiniest thing I had ever seen.

Bailey gave us good days and bad days. When he was 5 days old he developed meningitis and ecoli. I looked at him and wondered how a baby who was the same weight as a half a bag of sugar could possibly beat those two things together. One of those was enough to kill an adult, but two? And here was Bailey with a head the size of a big plum, looking up at us and determined to fight. Bailey fought hard and beat both infections. He then developed another that only one of the consultants had ever heard of. He beat that too. We were beginning to see that Bailey was a fighter and believed he could fight anything. Bailey’s tummy started to swell and his urine output stopped. He was swolen for nearly 2 weeks but they kept telling us ‘his bowel sounds were good’. Eventually they told us that Bailey had another infection, N.E.C. I have to say that by this time I thought he was invincible and could fight anything.

Bailey deteriorated to the point where they came to us and asked us to turn his machines off but we wouldn’t hear of it. Our son was a fighter and he would fight this. Two days later we went home for a few hours sleep and when we went the next morning Nigel went to speak to the doctor to tell them not to talk to me about machines being turned off. When he came back he told me that Bailey had deteriorated a lot over night and the doctors had said he was going into multi organ failure. His tissues were breaking down and as a result he had lost two of his 4 drips and they couldn’t be replaced. They had said that there was a chance that either his stomach would burst open or his heart would rupture. I thought they were trying to pressure us again because they needed the bed so I went to see my son. Nothing could have prepared me for what I saw.

I took one look at Bailey and I let out a cry. I had to be helped from the room. Bailey had swollen to about three times his size and truly did look like he was going to burst. His skin had turned yellow and there were areas that had started to turn black. I could see why they were losing the drips and knew in a matter of time his other two would fail and he’d die without the morphine. Nigel and I realised that we had to let him go. If it was left to Bailey, we had no doubt that his stubbornness and determination would be his downfall. He wasn’t going to let go. We talked about it and knew it had to be soon, we didn’t know how long the drips would last and it was his sisters birthday the following day. We didn’t want her growing up never able to enjoy her birthday. We called for family and friends to come and meet Bailey and to say goodbye.

Courtney spent the day with Bailey holding his hand and talking to him. Bailey was dreadfully ill but spent the whole day looking at us. I begged him to close his eyes, but he was determined to see everyone. I didn’t want him to look at me that day. It was too hard. I asked for 5 minutes alone with him and sang him Jesus loves me and told him how sorry I was that I couldn’t help him. I asked him to close his eyes and told him he’d done enough and it was time to let go. He didn’t listen though, he had people to meet.

That evening we began to notice that Bailey was flinching and the nurse said the morphine wasn’t working very well. He wanted to squeeze our fingers too which he had never done. He hated being touched. As soon as I saw him in pain I knew it was time.

I asked Nigel to send everyone away and as soon as everyone left they disconnected his machines. Bailey only lived for a few minutes but he lay in our arms and looked up at us. A look that will haunt me forever. I am so scared that he thought we were giving up on him. The day before his funeral a friend wrote a poem that began ‘A little angel whispered, Bailey it’s time to go’ We didn’t see an angel that night and we didn’t hear the whisper but Bailey heard the call and at 9.50 he closed his eyes and took a little breath before going home. Our loss was Heaven’s gain.

I didn’t want to hold Bailey, I could see by his colour that he was gone. I don’t remember much about leaving the hospital, I remember hearing a loud cry and then realizing it was me. I didn’t want to make a scene as I knew there were parents in the unit that needed to be strong for their babies but I couldn’t stand and the sobs shook my whole body. I was helped to the car and that night we left the hospital two very broken people.

Bailey had a post mortem, I had to know we had done the right thing. His entire intestines were gone. He had a piece the size of a baby finger nail. I thought that this would make it easier to live with but it doesn’t.

Bailey’s dad kept a journal while he was sick and you can read his story in more detail on his website. www.totsites.com/tot/babybailey

We are very proud of Bailey and the fight he showed. We truly are proud to be called his parents. He’ll be in our hearts….Always!

Camdynn’s story

February 20th, 2009 by Unknown

Camdynn and her twin sister, Ryleigh, were born on December 16th 2008 at 28 weeks due to PPROM. Camdynn weighed 2.5 lbs. and was 13 3/4 inches.

Camdynn had a rough start but after her first night she started to improve. About a week after she was born I was able to hold her. At this time she had a CPAP and was doing great. Things continued to go well until January 6th when she had to have a blood tranfusion and was “bagged” since she was having trouble breathing.

On Jan. 7th I went to visit her and her sister as I did everyday and the nurses and doctors told me she was having a much better day. She looked peaceful and beautiful and I felt better hearing she was doing okay.

Around 9:30 P.M. that night the doctor called me and said Camdynn had had a bloody stool and that they were sending off x-rays to make sure everything was okay but was told not to worry and that she would be fine.

Three hours later I got another call and was told that Camdynn had NEC. At this time my mother and I rushed to the hospital and saw my poor sick little girl. She had her eyes wide open and held my hand for a long time. After I had been there for a few hours Camdynn took a turn for the worse. She was having trouble breathing and they tried different ventilators on her but nothing was working. Every single NICU nurse was working on my beautiful baby girl but it just wasn’t enough.

After 23 days of life Camdynn passed away on January 8th 2009 due to NEC. As she was passing away her twin sister’s heart rate shot up. She knew her big sister was leaving.

I would never wish this pain upon anyone. There is no worse event then watching your child pass away. I look foward to the day when I can hold my beautiful baby girl again and she can meet her twin sister.

Patrick’s story

January 2nd, 2009 by Christine

Feb07 baby Patrick was born 28 wks early due to placental abruption. While pregnant I was diagnosed with intrauterine growth restriction due to inefficient placenta of unknown causes. Got through the fear of all the unknowns with an emerg c section and a premie. Releived he was alive and well. Baby was placed in the NICU and on day two he was breathing on his own. He was doing remarkably well with no major problems other than Jaundice.

Everyday was a rollercoaster ride though. News was always good in the daily rounds. We finally began to lighten up and breath easier as we were told he would likely be discharged to a regular hospital nursery. His stay in the NICU was for the most part uneventful. Out of the blue, on day 18 his vitals were acting funny. Wasn’t tolerating his tube feeds of BM. Nurses were keeping an eye out but had nothing concrete to tell us.

Next, he was working harder to breathe and they put him on CPAP. They moved him back to one to one care stating they were just being cautious. I left my little Patrick around 8pm that night feeling uneasy and with no information on what was happening to him. I had so many questions with no answers. Recieved call from the Dr. early the next day stating he had Necrotizing enterocolitis. She sounded pretty casual. I went to hospital at 6 am and saw a very sickly baby with a distended tummy. He was not responsive at all. Dr. told us they were waiting for a surgery consult. Little did I know that he would die that morning.

My husband and I clutched onto each other at the bedside and watched the doctors and nurses work on him. Slowly we were moved farther away as things got very hectic. The speed and manner with which they worked became more and more intense as his condition worsened. More staff joined in and I knew it was grave as his vitals were deteriorating.

Finally the last attempt to save his life was Chest compressions. When I saw that I knew it was over. I have to say that was the most traumatic agonizing thing we have ever gone through. It has almost been 2 years and I still cannot beleive we lost our baby. Finally they gave him to me and I got to hold and kiss him freely. Still so many unanswered questions like WHY, WHY, WHY?