Kenyatta’s story

September 9th, 2009 by Kenyatta Bolden

I gave birth to a girl at 28 wks. on July 6, 2009. She tolerated the milk I pumped until she was 2 1/2 wks. When she was taken for surgery, doctors told me there was nothing they could do. I am encouraging other moms to help bring awareness to the deadly infection(nec). I hope and pray that doctors will start to take x-rays of the stomach of premature babies if they are or aren’t displaying symptoms of nec. Maybe this can help them see if something is going on internaly before it is too late.

7 responses to “Kenyatta’s story”

  1. Tracey says:

    Im so sorry for your loss my ((hugs)) to you and your family. Your story is very similar to mine, my baby girl was born at 27wks and sadly was only with us for 11 days, i totally agree with you and mentioned this also to my hospital, it is very sad and makes me so angry that x-rays are not routine and are done when it is far too late especially when they know nec can take the lives of premature babies so quickly and can happen once milk feeds have started.

  2. I am so sorry for your loss. My son was 9 weeks old when he died from NEC in 2008. Losing him was the most horrific experience and words cannot describe the pain that comes with grief. I hope some day a cure can be found. Currently NEC cannot be diagnosed by looking at an x-ray or blood work. There is no definitive cause or cure just a lot of educated speculation. I spent some time with one of the lead researchers after my son passed away. He was so gracious to answer my questions and explain where doctors were with research and successes.

  3. Najee says:

    That’s exactly what I am fighting for…that’s the reason why I am not giving up on being a pediatrician because I also lost my son due to nec..and i really beliee tht early detection could have saved him

  4. Keisha says:

    I am truly sorry for your loss!! My daughter Kennedi Maie was born April 22, 2010 and weighed 1 pound 14 oz. Having her for three weeks was the best 3 weeks of my life. She lost her life May 17,2010 after being transfered from Cypress Fairbanks Medical Center to Childrens Memorial hermann in houston tx. This is new to me and I am having a really hard time dealing with this. If anyone can help please do.. GOD BLES YOU ALL.

  5. LondonDove says:

    I also lost my son, Elliot, at 11 days. He was 6 weeks premature and had a coarctation of the aorta that wasn’t diagnosed until it went wrong on day 2.

    The resulting loss of blood to the lower body led to NEC developing on day 10. Those 24 hours were the worst of my life culminating in the moment when I had to say yes, I was ready for them to stop bagging him. How could I ever be ready for that?!

    Until he arrested on day 10 Elliot had been improving and growing. He was only 3lb at birth. He needed to be at least 5lb for the operation to cure his heart condition but he never got the chance. NEC took that away.

    What we need are trained nurses who can spot the signs and are ACTIVELY watching for them. It’s the nurses who spend the most time with our babies so they are the key in my opinion. And we need research into ways to prevent this terrible, terrible condition from taking hold.

    No-one should have to suffer the way Elliot suffered and it is the ultimate shock to learn that babies die in such ways.

  6. Michelle says:

    Im sorry does cover it. My delievered at 28 wks due to plecenta previa. My son was born at 1Lb 4.5 Oz when he was 33 days old he came down with NEC. It depeloped to quickly for the surgoens to do anything for my baby. My husband held our son while he pasted in his arms. I still have a problem dealing with that lose and its been over a year. January 31th 2010.. The doctors and nurses couldn’t explain why my baby came down with it and not the other little one in the room. I think your right when they need to find a way to prevent this. Its a horrible experience to go through. I havn’t found a support group to go to about it. I hope you have had better luck than I have. I am terribly sorry about your lose. Most people don’t understand what its like to deal with something like this. Having a child in the nicu and have them past away when there life is just begining.

  7. These are really great ideas in on the topic of blogging.
    You have touched some good things here. Any way keep up wrinting.

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