Kaitlyn’s story

October 31st, 2007 by Cathy Evans

December 16, 2005 at 5:30pm Kaitlyn Jesse Evans was born by emergency c-section because her mom had severe Preeclampsia and HELLP. Kaitlyn was born into this world screaming, she was a fighter. Born at 28 weeks gestation she weighed 1 pound 8 ounces, and was 12 inches long. She breathed on her own for an hour before being placed on CPAP. The problem with the CPAP was the size of the nasal cannula, it was too big, later she was intubated and placed on a ventilator to conserve her energy.

Five days later she had bilateral hemathoraxs, and had two chest tubes put in. Except for the lung issue, Kaitlyn was making great strides. She was doing well with her feeds, was gaining a little weight, and had negative ultrasounds of the brain. Christmas Eve I was discharged and Christmas morning they removed Kaitlyn’s chest tubes. Things where looking up.

We spent countless hours in the NICU just trying to be the best parents we could to out first born child. Everyday we had more hope that she would come home, unfortunately… that never happened.

January 16, 2006 8:00am, I received the call from the NICU that Kaitlyn was not doing well. They ordered an x-ray and she had free air in her belly. We arrived at the hospital and met with a surgeon and the Neonatalogist. She was diagnosed with NEC and they believed from the x-ray, that it only effected the ascending colon. They would go ahead and do the repair. We walked her down to the OR and said goodbye. We sat and waited in the waiting room. About forty minutes later the surgeon appeared and escorted us to the “quiet room” nothing good ever happens in the “quiet room.” When they opened up her belly the found that ninety percent of her small bowel was perforated, they said it was inoperable and unsurvivable. That was when our hearts where broken. We went into a quiet room in the NICU and had the hospital chaplain baptize her. Making sure that she was not in any pain or discomfort we were able to hold our little girl and spend some peaceful time with her. We turned off the ventilator and she passed in our arms. She now watches us from up above. We love and miss you, our sweet Angel Kaitlyn.

I can only hope that one day there will be a cure for NEC. I wish it would not destroy any more lives. Thank you for allowing me to share my story.

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