Claire a survivor in her Senior Year at High School

August 6th, 2012 by Claire Vs. NEC

I found this website on Google trying to find out more about NEC. Though I am not a parent with a child who had/has NEC, I am the child that had NEC. This is my story.

Mom hadn’t been feeling well, one week during her pregnancy, so she went to her doctor to check if everything was okay. Turns out she wasn’t okay, she had been diagnosed with Pre-eclampsia. Mom was 29 weeks. I was delivered early the next morning.

I was born at 7:30 a.m. on May 15 at 2 lbs 14 oz.

I was put in NICU for safe measure and for the first few days I was fine. Soon though, the doctors noticed odd behaviors in my abdomen area. And later I was diagnosed with NEC. I was quickly stuck with I.V.’s, breathing tubes, and many other devices to help keep me alive without resorting to surgery.

I had a large perforation in my small intestines and it was then immediately clear the medical treatment wouldn’t cut it.

On my 10th day of life I was taken into surgery and had a large amount of my small intestine removed and given a illiostomy. A month and half later I had the reverse.

This year, I am in my senior year of high school and have had no problems since then. The only reminder I even had NEC, is the illiostomy scar laying innocently across my abdomen.

I posted this to give hope to the parents of a child with NEC. Hope that their child will grow. Be healthy. Live to see their 20th birthday.

My name is Claire.

I fought NEC.

And won.

4 responses to “Claire a survivor in her Senior Year at High School”

  1. Kelly says:

    Thank you for sharing your story, Claire! My daughter was born under similar circumstances, and I hope we’ll be as lucky as your parents were with you!

  2. yvonne says:

    thank you for sharing our story, my daughter Monique is 22 and will be 23 this year. She was born at 32 weeks and had surgery for NEC when she was 5 days old- she is a happy healthy young lady who will be getting married next June– I’m so glad to read your story.

  3. Dawn says:

    Thank you for your story… my daughter was diagnosed with NEC today (a month after being born). Yesterday at the hospital she was fine and looking at me 🙁 so this was a shock that I come to the hospital today and see her just lying there with all those tubes …. I hope she’ll turn out fine like you. This is my first child so i don’t really have that much experience in this situations, it’s really difficult.

  4. Frida says:

    Thank you Claire. I can’t sleep. My first granddaughter was born at 33 weeks and was diagnosed with NEC at 10 days old. She’s feisty and fighting. I will hold on to your story as tightly as I want to hold on to her.

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