Our son, Lincoln was born at 25 weeks and 1 day on April 5, 2009. On day 11 he developed NEC. The bowel had perforated and emergency surgery was performed. The surgeons were optimistic that the amount of small intestines remaining would maybe someday allow him to be fed orally. We [...]
I gave birth to a girl at 28 wks. on July 6, 2009. She tolerated the milk I pumped until she was 2 1/2 wks. When she was taken for surgery, doctors told me there was nothing they could do. I am encouraging other moms to help bring awareness to the deadly infection(nec). [...]
I developed pre-eclampsia while I was pregnant and had been in and out of the emergency room for about 4 weeks when my doctors finally decided to deliver Kendal. Kendal was born August 14, 2009.She was so alert when she was born and was only required to be on oxygen for about an hour. She [...]
Hi all, I can’t believe how common this so called rare disease is.
I had my twin boys on the 26th Oct 04 born at 25wks Thomas weighed 1lb 9oz and Matthew weighed 1lb 11oz sadly we lost matthew at 2 days old due to his prematurity he was just to small. Thomas seemed to do [...]
My twins were born in December 2008 at 31 weeks. My baby girl Phoebe weighed 2 pounds 11 and my boy Jonah weighed 3 pounds 8. Both were doing well for 5 days and then Phoebe developed NEC. We were called to the hospital and I couldnt believe how sick she looked. She was almost [...]
We underwent IVF in September 2008.
After all the treatment treatment, my wife produced so many eggs and her ovary’s were so swollen that the doctor advised us to only put back one embryo and not two as they normally would in IVF.
We were stunned to find out a few days later that it was a [...]
I would like to vent my story about my angel, baby girl Nevaya. My Nevaya passed away on Good Friday. She was born at 24wks, weighing 1 3oz. She was beautiful. My first child. I was told she would not cry, and she let out three loud cries. I was told she would not open [...]
I been wanting to make a web sit but i found this one.
I was 27 weeks and 6 days. I was in and out of the ER all week. Because of pains from a bladder infection. My boyfriend took me feb 23 and they told me “it’s just the baby sitting on the bladder.” They [...]
I went to the er at 8:00 on May 23rd from being dizzy & passing out at work, and staring having contractions so they checked me i was 24 weeks & 1 day pregnant then.
I went home after getting doses of Tributaline & was pretty drugged up still later that night at Midnight i woke [...]
On June 14, 2007 at 29 weeks 5 days Calypso was born. She was 3 lbs 1.9 oz and 13 inches long. She arrived here with a cry after a 6 week hospital stay while pg.
She did well at first and they started her on feeds. On June 20th she stopped digesting milk and her [...]
Our son Bailey was born at 26 weeks after I developed severe pre-eclampsia. Bailey was 500g (1lb 1oz)and was the tiniest thing I had ever seen.
Bailey gave us good days and bad days. When he was 5 days old he developed meningitis and ecoli. I looked at him and wondered how a baby who was [...]
Camdynn and her twin sister, Ryleigh, were born on December 16th 2008 at 28 weeks due to PPROM. Camdynn weighed 2.5 lbs. and was 13 3/4 inches.
Camdynn had a rough start but after her first night she started to improve. About a week after she was born I was able to hold her. At this [...]
Feb07 baby Patrick was born 28 wks early due to placental abruption. While pregnant I was diagnosed with intrauterine growth restriction due to inefficient placenta of unknown causes. Got through the fear of all the unknowns with an emerg c section and a premie. Releived he was alive and well. Baby was placed in the [...]
Writing this only 2 weeks after louies death is killing me but i need to write it down so maybe someone who knows what I’m going through can understand.
My beautiful son Louie was born on 23 november 2008 although 8 weeks early and weighing 2lb 14oz he was doing so well, breathing on his own [...]
Our daughter Kayleigh Dawn was born at 23 weeks on Sept 4, 2008. Kayleigh lived for 43 days in the NICU. She was a beauitful baby girl with a fighting spirit. My husband was so amazed how much she looked like her big sister.
She was doing well. Her head scan results were negative for IVH [...]
Dawson Thomas was born Jan 23rd 2008. He was born at 29 weeks. He was airlifted from Sudbury to Women’s College Hospital 2 days later. He was delivered early as I was sick with high blood pressure, Preclapsia. He brought us so much joy. He did very very well. He had a few bad days, [...]
Our son was born at 25 weeks, 5 days gestation because he had developed fetal hydrops from a virus I had contracted and passed to him. I was exposed to fiths disease while pregnant. Our son became severely anemic and built up fluid surrounding his organs in his abdomen while in the womb. The only [...]
Hello Maddison was born on 15.12.06 weighing 3lbs 14oz, she was born 3 months early due to my illness, I have a heart problem, I was told I may never have any children of my own because of my illness, so when I found out I was pregnant I was over the moon.
I went to [...]
My princess Anastasia Elizabeth was diagnosed with NEC back in may. Her bowels actually perforated and all her meconium had spilled out into her abdominal cavity. Luckily her doctors caught it before any part of her intestines died.
Upon doing a small procedure to remove the meconium it was discovered that she had roughly 30mls of [...]
I am reading the other stories on the website and I am reminded of just how lucky I am. If there are people reading this sight for information I hope that they can read my story and know that there is hope.
My mother delivered me in March of 1974. I was 10-12 weeks premature and [...]
HEARTBROKEN
BY TANYA CADD
This is a story about my little man.
Jayden Dareen Manikiza
17.02.08 – 05.03.08 Age 17 days old.
My name is Tanya Cadd, I had wanted a baby for ages I used to always go to the doctors for pregnancy tests and what did they say… Its negative. I will never forget the 18th of august [...]
Isabella was born via emergency C Section at 37 weeks due to me having severe pre eclampsia. She was born on 07/07/07 – a lucky birthday they tell us. HA! There has never been anything lucky for Isabella. They told us although small for a term baby, she was perfect and was kept in the [...]
My son daniel died of nec it was the hardest thing i ever went through I thank you for your story.
To the memory of my Daughter Corine Bay Feldman.
Born April 27 2005 -Died June 23 2005.
After losing our first child at 20 weeks gestation and almost losing our only surviving child to pre-eclampsia I convinced my husband to try for one more. We met with 14 doctors and weighed out all the possibilities. I had [...]
Catherine Marie was born 2-19-2007 at 32 weeks and weighing 3lbs and 13 oz.
She was a twin and sister weighed 4lbs 1 oz. Catherine had the cord wrapped around her neck three times. Two weeks after birth she developed NEC and was rushed to Children’s Hospital. She never required surgery as her intestines near perforated [...]
December 16, 2005 at 5:30pm Kaitlyn Jesse Evans was born by emergency c-section because her mom had severe Preeclampsia and HELLP. Kaitlyn was born into this world screaming, she was a fighter. Born at 28 weeks gestation she weighed 1 pound 8 ounces, and was 12 inches long. She breathed on her own for an [...]
My husband and I were finally married September 22, 2006 after a six year relationship. We had our careers, our marriage and bought a house…all with the plans of starting a family right away. I was pregnant within two months and we were ecstatic.
Other than evening nausea, my pregnancy was pretty uneventful until around 25 [...]