What is NEC?

June 27th, 2011 by Elaine and Chris Jones

Necrotizing Enterocolitis (NEC) is a gastrointestial disease which typically affects premature babies. The disease creates both an infection and inflammation in the bowels. It is still rare in the Neonatal Intensive Care Units, but when a preemie gets it, chances of survival decrease dramatically.

NEC seems to occur within the first two weeks of birth. The baby usually has started milk feeding. There is still no known cause, only theories. The good news is that research continues. Doctors like Dr. Jae Kim are making their best efforts in finding the cause and prevention of NEC today.

Babies surviving after NEC

June 19th, 2011 by Elaine Jones

Sometimes the stories come in and my heart smiles a little because a baby is surviving NEC. This site is created for parents like us to share our stories and help one another during dark times. The survival stories give hope, they give light to me even though Caitlyn did not survive. Our goal this summer is to create a forum, until then I thought those with babies surviving could comment here and help a little with hope…