Baby Bailey Rae Survival Story

April 17th, 2012 by Marla

First of all, thank you everyone for sharing your stories! Bailey Rae came into our lives on July 8th, 2010 5 weeks early at 5.2 pounds. She was in the NICU for observation because she was a little early. On July 12th we received that horrible phone call telling us that something was wrong and we needed to get to the hospital immeadiately.

Her skin was modeled when we got there and a doctor started showing us xrays and talking about NEC, which we had never heard of. Four hours later she was put on a ventilator and at 9pm her bowel perforated and she was taken into emergency surgery. A surgeon came and got my husband and I and told us that we should kiss Bailey goodbye because she would probably not survive. I reached in to touch my little girl and told her she needed to fight. She grabbed my finger and wouldn’t let go. At the time I thought she was saying goodbye and a pain so deep it took my breath away came over me. I realize now that she was letting me know how strong she really is.

Bailey made it through surgery but lost 70% of her small intestine. We were warned that it would be a long, hard road and that her chances of survival were still very small. My husband and I decided that we had to have faith in God and believe from that point forward that she was going to be okay. We never allowed any negativity around her.

She spent 4 long months in the the NICU and for awhile it seemed like the doctors only had bad news for us. They predicted infections, multiple surgeries and liver failure from the TPN. The last week in August Bailey’s small and large intestine were re-connected and she was given a feeding tube. On October 26th, 2010 she fianlly got to come home with her TPN, feeding tube and multiple medications.

Very slowly we started adding formula through the feeding tube and lowering the TPN. By February the yellow was gone from the whites of her eyes and her skin and by March we stopped using the TPN. She was on the feeding tube until November of 2011 and she endured what will hopefully be her last surgery earlier this month to close the hole where the feeding tube was. She eats everything she can get her little hands on now and seems to be growing at a great pace. The doctors tell us she is amazing and an absolute miracle.

We are so blessed and pray for all of you out there that are going through this nightmare now. Please know that there is hope! It is such a difficult, heartbreaking roller coaster ride. If anyone out there needs someone to talk to or vent frustrations to please contact me anytime. I wish that I had someone during our time in the hospital that understood what we were going through.

God bless all of you and your little angels!

3 responses to “Baby Bailey Rae Survival Story”

  1. Vina Ferrer says:

    I really love your miracle story! Especially when Bailey squeezed your finger before giving you Hope.
    I can still feel the pain when the Surgeon said that there was a possibility Tristan wouldn’t make it.
    I feel you were in a tougher situation since the Drs were so pessimistic with Baby Bailey. I’m so happy to hear that Baileys doing wonderfully and eats everything! Gives me more Hope! Thanks!

  2. Yvonne says:

    I am so happy to read another survival story– please feel free to contact me anytime if you have any questions, my daugther will be 23 this year and she had surgery for NEC at 5 days old-— Please keep me informed on how you and Bailey are doing.

  3. Oseng says:

    Bob, I don’t blame those bloody fiegoenrrs at all, just the bloody trades unions. They have done more to destroy the working classes than Mrs. T ever did! Just consider the mineworkers, the dockers, steel and car workers. Strikes for more pay, more time off work and ever increasing levels of employee protection’ without increased levels of productivity inevitably leads to job losses in the long run as it becomes unprofitable to employ them.Do you think the new Chinese Rover factory made up of kit taken from Longbridge will be handicapped by trade unions? I wish them every success. Whilst you no doubt praise trades unions for protecting workers’, they do not protect the interests of the unemployed.When you buy a can of beans, do you buy the cheapest can or the most expensive one? The one from the manufacturer that keeps overall costs to a minimum or the one that pays it’s staff too much, gives them too much holiday and is unable to control costs?

Leave a Reply

Your email address will not be published. Required fields are marked *