Baby Alana’s Survival Story

May 14th, 2012 by Rae Lhuillier

Alana came into this world 3 months early on April 22, 2011. She weighed 2 pounds 7 ounces. I was able to see Alana for only about 2 minutes before she was then transferred to Levine’s Children’s Hospital where they would be able to care for a small preemie. Alana was diagnosis of Respiratory Distress Syndrome (RDS) and was on a ventilator for almost 2 months. She also had a Patent Ductus Arteriosus (PDA) which was treated medically. Alana also had jaundice as well as pulmonary interstitial emphysema (PIE). Alana received her first blood transfusion at 1 day old, with numerous transfusions to follow. At 2 weeks of age Alana developed Necrotizing Enterocolitis (NEC). She had a perforation of her bowel and some removed along with ileim. After a second exploration Alana had more removed because it was dead. Alana has 52cm of bowel remaining which classifies her as having Short Bowel Syndrome. Alana also had Acute Renal Failure, secondary to NEC. She was treated for just over a month for renal failure and it was resolved medically. Alana was also had hypotension which too was treated for a month medically. She also had worsening Interventricular Hemorrhage (IVH) Grade III right side and Grade IV on the left. By October 10, 2011 the IVH has reduced in size. During Alana’s NICU stay we were informed that she has Hypothyroidism. This is being treated and we are being followed by an endocrinologist. She also developed Retinopathy of prematurity (ROP) Stage 1 and 2 in both eyes. By the time of discharge they had both resolved themselves. On August 14, 2011 Alana presented with enterocolitis (clinical). No perforations were found during exploratory surgery. On September 19, 2011 Alana had her last surgery in the NICU. This was to place a G-tube and a CVL line. During Alana’s stay in the NICU, she had many days of NPO, NG tube fed or bottle feeds. On October 17, 2011 Alana was discharged home. She had a G-tube and a central line. Alana has done well at home and on January 18, 2012 Alana was able to get her central line removed. She is still tube feed only with the amount that she is not able to bottle during the day. Alana is on Elecare as it is the most elemental formula. She still has issues with her Short Bowel Syndrome but that is to be expected. Alana had also sported a Doc Band for a while to correct Plagiocephaly. Alana is followed very closely with her GI doctor, Pediatrician, Endocrinologist, and Ophthalmologist.

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One response to “Baby Alana’s Survival Story”

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