Archive for April, 2013

Baby twins Tobi and Fore’s Survival Story

April 22nd, 2013 by Ata

Tobi & Fore – NEC Survivors

Hello everyone, last night for some reason, I started to think about my pregnancy/birthing experience and stumbled upon this website. After reading so many stories, I just feel very blessed and wholly thankful to have our twin boys who are now 3.5 years old, hale and hearty.

I found out I was pregnant in February 2009 and was completely ecstatic. In my forceful bid to get a scan (I was told I couldn’t get a scan until I was 16 weeks at my regular OBGYN), I was sent to a specialist and that’s where I found out we were having Monochorionic-Monozygotic twins. I was also told their survival rate was 50% and even if they did, they would have all sorts of complications. I was in utter shock for two reasons, 1) we were expecting twins 2) what did being pregnant with Mo-Mo twins mean?
At this point, I left the Dr’s office and was on the phone with my husband (who was out of the country at the time) and family to let them know what I had just been told. The next day, I was on my computer doing some heavy research on what hospital I would have to work with to ensure my babies were delivered safely. I think my actions coupled with God’s divine intervention had a lot to do with how everything worked out.

After being in the hospital (Emory Midtown) on mandatory bed rest for 2 weeks, Tobi and Fore were born via c-section at 34 weeks on August 25, 2009 weighing 4lbs 1oz. They were in the NICU for 4 days and we were then told Fore was extremely sick and needed to be put on antibiotics. The doctors and nurses were pre-emptive and also started Tobi on antibiotics as a precaution. True enough, Tobi followed suit 2 days later and became extremely ill. After watching out for symptoms and a few tests, we were told they had both developed a case of NEC. NEC, what is that?

It was pretty scary period for us as they stopped feeding completely, put them on IV’s, picc lines, constant x-rays, blood transfusions, etc. We would painfully watch the monitors as their heart rates were all over the place, were told it would be best not to hold them the first few weeks because they were in so much pain, saw the boys constantly being irritated by the tubes in their mouths and noses. I could go on and on, it was just horrible. After about 40 days in the NICU without surgery, (they responded well to treatment) we were able to take the boys home.

After being home for about 2 weeks, Tobi was not his boisterous self, was pretty weak, not eating and I noticed he seemed constipated. He finally had a BM the next morning but I wanted to take him to see his Pediatrician just to be sure. As Dr. Simon checked out his diaper, he noticed bloody stool and immediately called Scottish Rite Hospital to let them know we would be there immediately. Apparently, he feared a re-occurrence of NEC had occurred with Tobi and immediate attention was needed.

We were offered an ambulance but I opted to drive. I am not quite sure how I gathered the courage and strength to drive, as I was pretty confused and scared. Luckily, my mother-in-law was with me. How could NEC re-occur? We were told a chance of this happening was rare.

I spent the night with Tobi in the hospital that day after Doctors confirmed that he indeed had a re occurrence of NEC. My goodness, I thought; NOT AGAIN. Tobi cried his heart out the whole month and half he spent back at the hospital. It was always too much for me to bear so I had my mother and mother-in-law spend more time with him at the hospital. Luckily, after primary treatment, he responded very well and didn’t have to go through surgery after all like the doctors had indicated.

I usually do not put up any comments or posts but I had to for this as I experienced it first hand and want to give a glimmer of HOPE to parents out there with children who have NEC. Be steadfast, faithful and prayerful. Best wishes to you and your little angels.