Archive for November, 2012

Update on our Survivor Monique

November 29th, 2012 by Yvonne Dutton

Update on Monique:
Some of you may have read Moniques story previously. On November 16 she turned 23 years old. On November 21 I remembered that it was the day that she was almost taken from me. I so clearly remember getting the phone call that her bowels had perforated and the hospital wanted permission to do emergency surgery. I had only went home to change clothes as the hospital she was at was not the hospital that I had been admitted to have her. I could not get to the hospital fast enough. As I came off the elevator, she was being wheeled into the elevator. I got to kiss her and tell her I loved her. then the long dreaded wait began. Monique got engaged this past June, we are planning her wedding. I can not express how emotional I get thinking that I may have never had this opportunity with her. For all of you who are starting this journey, it is a scary one and the nervousness and anxiety never goes away. I always wonder how she will do when I’m no longer around to ask her “where is the pain”, “what does it feel like”, “when was the last time you had a bowel movement”, “what did it look like”…. I pray that when she has flare ups that she will seek the treatment she needs.. its a scary thought to know that one day that I wont always be there to watch for those things. My advice to you parents who are going through this is to let your child know the difference between the different pains they may have from a normal belly ache to something more severe. While it may not be a nice thing to talk about, let them know that if they don’t have a bowel movement at least every 24 hours and they have pain that they need to seek medical help, if their stool is yellow or green, they need to seek medical treatment, if the pain is so severe that they cant walk or seem to breathe that they need to seek medical treatment. Eventually your children will grow up and you will no longer be there to watch for those conditions. the best thing you can do is help them to be independent and recognize “normal” for some children may not be “normal” for them. I hope this helps

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Baby Brentlee’s Survival Story

November 7th, 2012 by Amber Stockard

When I was 39 weeks I delivered my healthy little girl by a scheduled c-section (not due to complication) she was so beautiful! Brentlee Stockard was born at 6lbs. 14 oz…. Very healthy…. I only breast fed… She choked twice while we were still in the hospital but were told she was still trying to get if of the fluid from birth… We went home and were home for three weeks! She would choke occasionally, sometimes severely enough that I had 911 dialed in my phone but I could always get her breathing again… My doctor was convinced she had acid reflux and was lactose intolerant… She had told us to try a formula that we gave to her sister when she was a baby, so we did…. And that’s when the choking for a lot worse… I called and told them and they wanted to get her in that same day… When we went she happened to spike a fever of 100.4 which was the temp that the doc sent to ER… So we headed to the ER thinking we were going to be in there for 48 hours for observations and then go home…. While we were in there she had stopped running the fever and the ER was giving my doc a hard time about sending us over because she appeared ok…. Sounds crazy but I hoped so bad she would choke while we were there so they could see how bad I really was, and she did…. They rushed in and were suctioning her throat and mouth… She was finally breathing again and then the nurse noticed her stomach had become really distended…. They began removing all the formula from her stomach and called a care flight team to come and get her…. They had her on antibiotics for three days and then her bowel perforated and she was rushed in to emergency surgery…. They removed 2 ft of bowel and have Her an ileostomy… It was reversed three months later… She was in the NICU for 98 days… She is now 15 months old and the cutest little girl with a belly scar ever!
We have started a Facebook page trying to raise awareness for NEC and we would love for everyone to join and help us out!

http://www.facebook.com/NecAwarenessForBrentleeAndAllTheAngelNecBabies?ref=ts&fref=ts

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