Archive for June, 2012

Twin ‘connection’ with NEC

June 21st, 2012 by Dr. Jae H. Kim (MD, PhD, FRCPC, FAAP)

The reason why we see so many twins with NEC reflect a couple of things.The most important is the link between preterm birth and twins. Having multiple births puts you at higher risk of delivering preterm. The second issues is that twins sometimes can share a blood supply between them leading to a serious problem called twin to twin transfusion syndrome. In this case both twins develop risk factors that can set them up for NEC because one twin is compromised because of too much volume while the other is disadvantaged with too little blood volume.

Preventing twin pregnancies is not easy and in fact we see more twinning occurring as a result of artificial reproductive technologies so I see the problem only getting worse before better.

Baby Camryn Leena Rose’s Story

June 19th, 2012 by Ashley Garetson

On the morning of February 18, 2012 I woke up in the utmost pain I’ve ever endured. From 8am until 7pm I endured the pain the whole time. Around 7 that night I finally called my doctor and told him I had begun to start spotting and was having terrible back pains. He told me to come in to the hospital just to get checked out. As soon as I hung up the phone I began bleeding very heavy. As soon as I arrived at the hospital all the pains and bleeding stopped. I was checked out by a nurse who said she believed she felt a little bit of cervix but was not for sure. I had no idea what that meant, I assumed it was good. Within 10 minutes my doctor walked in as I was having contractions. He checked me out and said he felt NO cervix and that I was dilated to a 9. I immediately began bawling. My fiance told the doctor there was no way she’s only 28 weeks. My doctor told me there was no stopping the baby now that she was coming whether we were ready or not. Being at a 9 already I could not be transported to a hospital with a NICU as I would deliver on the way. Within an hour the NICU showed up and got everything ready and set up. As soon as they were ready my doctor broke my water. As soon as he broke my water baby girl became breached. He flipped her around but as soon as that happened her heart rate shot above 220 and he rushed me in for an emergency c-section. I ended up having a double c-section (cut my uterus as well). Saturday February 18, 2012 at 11:10pm Camryn Leena Rose was born weighing 2lbs 9oz 15in long. She was life flighted straight to Stormont-Vail NICU (about an hour from where I was). We received our first phone call at 330am saying Camryn was doing AMAZING. As soon as she got there she was taken off oxygen and was doing that all on her own. She had a bubble CPAP that sent pressurized air to her lungs to help them work as she was so small. She also had an IV for her nutrients. I was in the hospital until February 22. Those were the longest three days of my life. Camryn continued to out do herself day by day. On the morning of March 7, 2012 my fiance and I received a phone call that Camryn was not doing well. They thought she had a GI tract infection. When we got there at 930 that morning we received information that she was diagnosed with NEC. Her heart rate was in the 200, her temperature was 100.2 and she was about to receive her 2nd blood transfusion since she arrived there. My fiance and I went back to the Ronald McDonald House as I could not continue to stay there and watch her be in pain. 600pm that night we gave them a call and Camryn was doing better. She was stable; her heart rate was back to normal, her temp was normal. Within the hour we received a phone call saying Camryn had taken a turn for the worse and we needed to get there ASAP. Thank God we were 2 minutes away. As soon as we arrived we were told that as soon as they got Camryn stable the Neonatologist would come talk to us. Withing 5-10minutes the doctor came in. She informed us that Camryn’s heart rate was between 60-90, she was on a ventilator, her ph level was quite low so they were to assume her potassium level was high. I was not ready for what I was about to walk in and see. When we walked into Camryn’s room she had 4 more IV’s in her (not including her picc line), and she was on her ventilator. I went straight to her to talk to her. She was not even able to grab my finger. The Neonatologist informed Craig (my fiance) that Camryn’s survival chances were 50/50 and that whenever her heart rate dropped below 60 they were to do CPR and that every time they lost her they could give Camryn up to four epi pens. Around 830-900 we lost Camryn for the first time. She received three epi pens and they saved her. They put her on the highest powered ventilator they had. Within an hour we lost her for the second time. She received four epi-pens and the doctors and nurses could not save her. Within twelve hours NEC took Camryn’s life. Today Camryn would be 4 months old 1month adjusted. My fiance and I created the Camryn Leena MVP Foundation. Camryn’s foundation was created to help out the NICU Camryn was at and to help the families out as well. We intend within the next two years to create a scholarship for Preemies to apply for; we will give two scholarships each at $500.

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Baby boy survivor

June 19th, 2012 by Natalie Perez

When I found out I was pregnant it was the most amazing feeling in the world, even though I was young and I was not ready I felt so complete and so happy. For 9 months I took the best care of my self possible I ate health I did everything I was suppose to. I was so happy and exited to become a mother. My life never felt so complete. July 26th 2011 I met him. My little Prince Roman Alexander Weighting 5pounds 11oz measuring 19in. Full term and healthy. I was in love. 3 days later we went home. To my surprised the worse was about to happen. After 3 days of being home I noticed while changing his diaper there was blood in his poop. I had no idea if it was normal or not so I rushed him to the er. They did xrays and thought he was only allergic to cows milk but the blood kept coming I was so nervous than the doctor told me something serious was going on and he might need surgery in that moment my tears came gushing out. I was so sad I could believe my baby was sick. After an ultrasound they confirmed he had NEC. Immediately all feedings were stopped and he got an iv for fluid to keep him hydrated the next day they started tpn and lipids trough a pic . He was also on antibiotics. They put a tube down his nose into his stomach and I saw there was blood. I was so scared and heartbroken but I couldn’t give up. A week later my mom left to Mexico because my brother was sick I couldn’t believe everything that was going on. While my son was fighting for his life my brother had lost his. He passed away. I was in the hospital with my son I couldn’t concentrate in anything else than getting my son healthy. After 10 days if antibiotics the infection was gone we began feedings and went home 5 days later. Everything looked good but I would notice my son would cry a lot while passing gas, I thought maybe he had colic. 2 weeks after going home my baby was back in the hospital his belly was distended and soon after he was throwing up they did test and x-rays for about a week than we found he had a narrowing where the infection had occurred once again I was terrified but I knew I had became a mother for a reason and we had gone through so much already. They did a surgery to remove 4in of his intestine I still remember the agony I felt while I was in the waiting room. The surgeons kept me updated on everything that was going on. 3 hours later my baby was out in the NICU. When I saw him after surgery my heart broke he was connected to all kinds of things I couldn’t stand seeing him like that. I would of done anything to make my baby not go through that. I held him all day and night except when they needed to check him. I made sure he felt me near at all times. He slowly started getting better. He is now 10 months and he makes my life so complete him and his dad are all I have with me. My son is funny and smart i’m so blessed he got through everything everyday I thank God for letting me keep him. I love my son so much. He eats everything I give him except dairy. He is a little thin and small but he is healthy. He is a warrior like all the baby’s in this page. My son changed so much lives and everyday I try to be better for him.