Archive for August, 2011

Benjamin’s Survival Story

August 15th, 2011 by Shannon

My little one was born 13 weeks early weighing 2lbs 7oz. He did fantastic at first, but on day 15 he stopped tolerating breastmilk. His belly began to swell and through x-rays he was diagnosed with NEC. 7 days later he had emergency surgery. We were told there was a chance he would not survive. The surgeon found 6 pinhole perforations in his mid small bowel. She removed about 16cms. Because Benjamin was so sick she clamped each end of his bowel and closed him up. 3 weeks later she went in and reattached. Unfortunately a week later his belly began to swell and became very red. The surgeon did emergency surgery again..it took almost 5 hours. She found that his bowel had tore apart and was leaking into his belly. He had a stoma and mucuou fistula for 6 weeks. Finally his bowel was successfully reattached and within a month Benjamin was on full feeds and was able to come home. He did have one more surgery due to a large hernia from all the operations. Today he is 14mths old and has absolutely no digestive issues. He is 25.5lbs and perfectly healthy. All in all he lost 20cm of mid small bowel. Fortunately it was an fairly insignificant portion and it hasn’t effected his health. We are so thankful.

Laura’s Survivor Story

August 7th, 2011 by Laura Eyre

My name is Laura I am a survivor of NEC, I am 23 years old and will be qualifying as a nurse in two months time.

I am a quadruplet and was born two months prem, my brother and sisters were small but healthy. I was lucky enough to survive NEC but I spent my teen years being very self conscious about my scars.

I had two scar revisions at the age of 14 and 15 and now that I am older I’m very proud of my scars and feel very privileged to be a survivor.

Thank you for giving me the opportunity to share my story with you all.