Archive for August, 2008

Declan’s story

August 25th, 2008 by Linda Richards

Our son was born at 25 weeks, 5 days gestation because he had developed fetal hydrops from a virus I had contracted and passed to him. I was exposed to fiths disease while pregnant. Our son became severely anemic and built up fluid surrounding his organs in his abdomen while in the womb. The only good chance he had for survival was to be delivered early, according to our perinatologist. Our son, Declan, was born on March 19, 2008. He came out crying which shocked everyone and after a quick kiss on the forehead he was rushed off to the NICU. I spent 9 weeks by his beside helping the nurses care for him and actively doing kangaroo care. He was doing well and only had typical preemie issues to deal with once he recovered from the virus. Like most other stories I have heard, our son got sick quickly after having a “good day” in the NICU. When he didn’t respond to antibiotics immediately, surgery was performed and we discovered nearly all of his small intestines had died. The doctors made him comfortable and we loved on him until he passed away on the evening of May 23, 2008. The pain that comes from losing a child is unbearable at times. Only those who have experienced it can understand the full range of emotions that plague us mothers.

I have had such a great support network of friends and family. I have also kept a blog at www.caringbridge.org/visit/miraclebaby3 which has helped me cope with our loss.