Archive for December, 2007

Corine’s story

December 10th, 2007 by Susan Belisle

To the memory of my Daughter Corine Bay Feldman.
Born April 27 2005 -Died June 23 2005.

After losing our first child at 20 weeks gestation and almost losing our only surviving child to pre-eclampsia I convinced my husband to try for one more. We met with 14 doctors and weighed out all the possibilities. I had a 66% chance of getting pre-e again. We also found out that I have a rare newly discovered blood disorder…Low protein S. I was to take heparin shots twice a day to prevent blood clots during the pregnancy. Problem solved so I thought.

At 28 weeks I was admitted in the hospital for round the clock observation. Our daughter was diagnosed with IUGR (Inner Uterine Growth Restriction). I spent 28 days on bed rest and during that time my child grew 1/2 pound. She was born at 32 weeks weighing 2 pounds exactly and was only 12 inches long. She was healthy at first. Never on Oxygen. Then about two weeks in she showed signs of NEC and they stopped her feeds. She was fine. One day she was on full feeds and ready to move into a crib and 24 hours later she was diagnosed with NEC; 3 days later she had emergency surgery and they removed 1/4 her lower intestine. Some days she was good, others not so good. One day they said she was ready to come off the oxygen then 3 days later she was gone due to pulmonary embolism. She lived for 56 days and it was a roller coaster all the way.

Some children can live though the NEC but mine just kept getting knocked down.

She would pull though one problem just in time to get clobbered by something different.

Catherine’s story

December 10th, 2007 by Unknown

Catherine Marie was born 2-19-2007 at 32 weeks and weighing 3lbs and 13 oz.

She was a twin and sister weighed 4lbs 1 oz. Catherine had the cord wrapped around her neck three times. Two weeks after birth she developed NEC and was rushed to Children’s Hospital. She never required surgery as her intestines near perforated but she “bottomed out” several times requiring her to be placed on a ventilator for 24 hours. Now she has cerebral palsy and we are still learning as to what extent.

Pray for her.