Baby boy survivor

June 19th, 2012 by Natalie Perez

When I found out I was pregnant it was the most amazing feeling in the world, even though I was young and I was not ready I felt so complete and so happy. For 9 months I took the best care of my self possible I ate health I did everything I was suppose to. I was so happy and exited to become a mother. My life never felt so complete. July 26th 2011 I met him. My little Prince Roman Alexander Weighting 5pounds 11oz measuring 19in. Full term and healthy. I was in love. 3 days later we went home. To my surprised the worse was about to happen. After 3 days of being home I noticed while changing his diaper there was blood in his poop. I had no idea if it was normal or not so I rushed him to the er. They did xrays and thought he was only allergic to cows milk but the blood kept coming I was so nervous than the doctor told me something serious was going on and he might need surgery in that moment my tears came gushing out. I was so sad I could believe my baby was sick. After an ultrasound they confirmed he had NEC. Immediately all feedings were stopped and he got an iv for fluid to keep him hydrated the next day they started tpn and lipids trough a pic . He was also on antibiotics. They put a tube down his nose into his stomach and I saw there was blood. I was so scared and heartbroken but I couldn’t give up. A week later my mom left to Mexico because my brother was sick I couldn’t believe everything that was going on. While my son was fighting for his life my brother had lost his. He passed away. I was in the hospital with my son I couldn’t concentrate in anything else than getting my son healthy. After 10 days if antibiotics the infection was gone we began feedings and went home 5 days later. Everything looked good but I would notice my son would cry a lot while passing gas, I thought maybe he had colic. 2 weeks after going home my baby was back in the hospital his belly was distended and soon after he was throwing up they did test and x-rays for about a week than we found he had a narrowing where the infection had occurred once again I was terrified but I knew I had became a mother for a reason and we had gone through so much already. They did a surgery to remove 4in of his intestine I still remember the agony I felt while I was in the waiting room. The surgeons kept me updated on everything that was going on. 3 hours later my baby was out in the NICU. When I saw him after surgery my heart broke he was connected to all kinds of things I couldn’t stand seeing him like that. I would of done anything to make my baby not go through that. I held him all day and night except when they needed to check him. I made sure he felt me near at all times. He slowly started getting better. He is now 10 months and he makes my life so complete him and his dad are all I have with me. My son is funny and smart i’m so blessed he got through everything everyday I thank God for letting me keep him. I love my son so much. He eats everything I give him except dairy. He is a little thin and small but he is healthy. He is a warrior like all the baby’s in this page. My son changed so much lives and everyday I try to be better for him.

2 responses to “Baby boy survivor”

  1. Elaine says:

    Natalie thank-you for sharing your story and the beautiful photo of the two of you. Please keep us updated on him, he is hope for us…and he deserves a wonderful life!

  2. Monika says:

    Dear ArtApologies for being off-topic: I was wondering if you have any fuhrter thoughts on Eczema in general and Seborrheic Dermatitis in particular. I know that eczema was discussed in general a couple of months ago in the comments section perhaps you have additional insight at this point.I am currently eating a strict paleo diet (i.e. no grains, sugar and dairy). Earlier this week I cut out nightshades as well and started to supplement 5.000 IU of Vit-D3. From experience, symptoms have flared up when consuming large amount of sugar (esp. fructose) and when I have been drinking alcohol. However, some times I have been able to eat very unhealthy and/or drinking alcohol without any problems so there is not always an immediate or clear link. Symptoms have started to slowly recede, but I have yet seen any significant improvements. Do you think glutamine could be beneficial? Kind regards,Viktor

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