Baby Landon’s Survival Story

May 29th, 2012 by Rebecca Buchholz

Landon was delivered via emergency c-section Easter Sunday, April 24, 2011 @24 weeks. I developed a sudden onset of severe preeclampsia/ HELLP. He weighed 1 lb 2 0z and 11 1/2 inches long. he was a fighter from the start and he had the best primary nurse to help us through everything.
He was doing well, taking a little of breast milk at a time, opened his eyes, seemed very alert and showed his annoyance of his nest. A week or so before Mothers day his stomach started turning black/blue and become distended and more noticeable. He wasn’t tolerating the breast milk and seemed very uncomfortable. A drip was placed to try to drain whatever was causing his discomfort; didn’t work.
On mothers day he had an exploratory surgery, it was decided that day and it was the hardest decision to make, he was so tiny and frail. Surgery seemed to take forever. it was found that 60% of his bowels were bad, luckily there would be enough left after removal for a life to live; what type of life we were not sure. He made it through surgery and became puffy and once again uncomfortable. His abdomen was not closed, only the inside which needed to heal first. Landon had an colostomy bag and whatever he would produce would be put in the other side to get his bowels working the way they needed to.
August 12, 2011, two days before his due date he had his ostomy takedown surgery and was reconnected. His scar reaches hip to hip and will grow with him.
He had two major surgeries between the previously mentioned for a heart murmur and central line placement. Around 5 months 1 month adjusted he developed pnuematosis and was brought back to one of the critical NICU rooms. All the staff was worried and knew him very well. whoever was working and could be by his side was there to check on him.
Landon made it through everything, there were tough times and funny times. Even though he went through a lot he is a happy boy who loves attention and hates being alone. Guess that comes from so much attention for 7 month in the NICU.
He is now 1 year old 8 months adjusted , 14 lbs 8 oz and 26 inches long with two teeth! loves his jumper and is very active. He takes Neocate for formula and will have a limited diet when he gets older. He love peas but not green beans so much. we will start on the next color for food in a little while.
Mothers Day 2011 was one of the hardest days for our family; next to Easter 2011. But if we had not done the surgery this would have been a completely different story. When it comes to NEC, you can not rush the feeding process; it only sets you back a couple of steps.

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