May 7th, 2016 by Amber C.

Hi all! I’m a 26-year-old, NEC survivor. I used to really hate the giant scars on my stomach from the NEC surgery, but everyone told me they were my battle wounds growing up. My grandma still refers to me as a miracle, and I get the feeling that maybe she’s right at times. Seeing how devastating preemie births and complications from NEC can be often makes me wonder why I’m still here so many years later.

I was born 3 months premature on April 10, 1988. My birthday was supposed to be July 10, 1988. From what I’ve been told, I was in the hospital for months. All my baby pictures are me in an incubator, hooked up to tubes and machines. My parents couldn’t hold me. My grandparents, aunts and uncles were constantly visiting me in the hospital during those times, holding my hand through the hole in the incubator.

I know my parents did have friends in the hospital, another couple who had a preemie baby boy named Michael. He had NEC too and sadly didn’t make it. Going through this experience, despite having no recollection of it now, does make me feel very blessed to have been a survivor.

For all the parents grieving, or scared, or wondering what’s next… stay strong.

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