The Purpose of this site

Elaine and Chris Jones lost their beautiful daughter, Caitlyn Grace Jones, to NEC on April 16, 2006.

This website was created as support network for parents like us, where both stories and up-to-date research can be shared regarding NEC (Necrotizing Enterocolitis).

What is NEC?

Necrotizing Enterocolitis (NEC) is a gastrointestial disease which typically affects premature babies. The disease creates both an infection and inflammation in the bowels. It is still rare in the Neonatal Intensive Care Units, but when a preemie gets it, chances of survival decrease dramatically.


    • Verena Zwaagstra: Nicole, I am feeling with you. When I was 13 weeks pregnant ...
    • Najee: That's exactly what I am fighting for...that's the reason wh...
    • Najee: Im so sorry for your loss..noone knows how it feels to lose ...
    • Kristy: Im so sorry for your loss, my heart goes out to you. I had t...
    • crystal fitzgerrel: i am so sorry for your loss. we had a planned c-section on 1...